LOUISIANA PRIMARY IMMUNODEFICIENCY NETWORK (LAPIN)
The Jeffrey Modell Center for Immunodeficiencies in New Orleans (www.JMCnola.org) has sponsored a broader Louisiana Network for Primary Immunodeficiencies, LAPIN, with the purpose of promoting the knowledge, recognition and treatment of primary immunodeficiency diseases (PIDD) in Louisiana.
To make sure that PIDDs are recognized and treated promptly, LAPIN will use various forms of direct and electronic diffusion of knowledge, a network of teleconferencing, the use of social media, hospital billboards, hospital newsletters and other forms of interaction with members of LAPIN and other health care professionals. LAPIN members will offer consultation to physicians and patients, health insurance companies and also health authorities. CME courses that until 2012 were conducted at the JMC in New Orleans, will be held at multiple locations in Louisiana with active participation of local LAPIN members. These different activities will be detailed further as we establish LAPIN and receive input from future members.
A well-defined goal of LAPIN is the establishment of a patient surveillance network to monitor the number of patients diagnosed every year. This surveillance system will be a reflection of the impact of education about PIDD. This surveillance effort is essential to know the current status of these diseases in this region and to offer important information about the importance of PIDD to health authorities, insurance companies, physicians and health professional organizations.
Active participation in this patient survey will be a prerequisite for clinical immunologists to become official physician members of LAPIN in order to have access to educational material, consultation services and general information about PIDD which will be distributed through a member-restricted section of the JMC-LAPIN website.
Different membership categories will allow the participation of people from multiple disciplines and organizations in LAPIN activities. These membership categories and the benefits accorded to them are described under MEMBERSHIP in the LAPIN section of this website.
Funding of LAPIN activities will be supported by tax deductible donations to a restricted account within the Children’s Hospital 501c3 account. This account will be overseen by the head of the New Orleans Jeffrey Modell Foundation, who will present a yearly report to the LAPIN members. LAPIN will collect small membership fees, sponsorship contributions for educational activities and donations to support the goals of LAPIN.
All interested individuals and organizations are invited to be part of LAPIN and help to achieve its goals. LAPIN offers a unique possibility to contribute to the improvement of the life of PIDD patients and their families in a large part of the world. Join and share your enthusiasm for this noble cause with many other like-minded friends in LAPIN.
PUBLICATIONS BY LAPIN
Overview of antibody-mediated immunity to S. pneumoniae: pneumococcal infections,
pneumococcal immunity assessment, and recommendations for IG product evaluation
Influenza immunization in patients with common variable immunodeficiency (in press)